Penn Township man set to run New York City Marathon to support his son, raise funds for genetic disorder foundation

Will Hoffman’s main motivation for running the New York City Marathon

Rather, Will and about 25 other runners are chasing down

a fundraising goal of $150,000 for the Children’s Tumor Foundation

an organization that supports research for a cure to a genetic disorder called neurofibromatosis

During the race, Will, 45, of Penn Township will channel energy from

the resilience of people like his 12-year-old son, Liam

who was diagnosed with the genetic disorder about two years ago

Preparing for a marathon requires hundreds of miles of training

Will said, but this dedication often goes unnoticed by the casual observer

In the same way, people do not see all of the challenges that come with a neurofibromatosis diagnosis

“A marathon is hundreds of miles. The race is just the last 26.2 

That’s kind of why the marathon fits in with (the foundation) so much

Will said, “because at mile 20, when you’re hurting and tired

you think about what these folks have to do everyday and live with everyday and overcome everyday.